Blog

  • Graduations, Weddings, and Funerals

    Often, time feels like its falling through the hourglass faster than it should.  We are in Senior season at LifeTouch.  A steady stream of the class of 2018 are rolling in the door, full of their future dreams and young energy.  There holds for them a kind of promise of all things possible and for a while, we are given the gift of capturing that in a photograph.  In those moments, the hourglass stops.  Everything stands still and as my shutter clicks, I soak in all that energy and promise.  I’ve enjoyed all the conversations with their families,  so reminiscent of when I was looking at those proofs of my son, almost in tears.

    zk3Very little has changed since I had my Senior photos taken over 30 years ago, and it stirs in me my own still frames.  I can still clearly remember the shock on my face as they held up that scrap of velvet fabric and I had to bear my shoulders so they could wrap me in it.  I felt so awkward and yet, when the proofs arrived, it was one of the rare times in my young life that I was enamered with my own image.

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    I need to have these moments right now.  I need to visit those moments that sit at the bottom of the hourglass.  In the last month, I have stood witness to Fruit leaving us before his 54th birthday.  A friend of Gary’s suddenly lost her husband who was only in his early 40s.  On Mothers Day, a friend was in a hit and run accident.  She was posting on Facebook about how angry she was.  How her back was sore but otherwise, she was ok.  She grumbled in the early hours of the next day about her struggle to get comfortable so she could get some sleep.  On Monday morning, she died.  Just like that.  Her hourglass had run out.  She was 5 months younger than me.  That same rage that I felt for Fruit welled up again.

    So it seems fitting that on the heels of Seniors, I step into wedding season.  Weddings are, by far, my favorite subject to photograph.  I’m covering three of them this June.  One for each departed soul who carried out their vows of “till death do you part”.  It feels like a reset button for me.  As if capturing all the joy and love of those moments can ease this anger I feel for those other three.  But even then, there are freeze frame images of my own wedding to Keith.  The knowledge that his hourglass ran out over 5 years ago and I still find myself wanting to flip it and start it over again.  That sensation of working late nights and climbing into bed next to Gary, who long ago had fallen asleep, and pressing my hand against him to feel the warmth as I listen to him breath.  Finding myself praying that there will be endless moments for us to share and knowing that there are no guarantees of it happening.

    And yet, there is still that young girl graduating, moving on to college and marriage and motherhood, who will always believe in the impossible.  That still carries with her the energy and dreams and promises of her future.  Her hourglass filled with millions and billions of stars.  Each one falling with its own color and light.  Some so brilliant they burn out as they fall.  Others softly glowing and almost floating as they fall.  Mixed in with them are those occasional dark dense stars that weight on my soul.  We all have them, I guess.  But when I look at the cacophony of everything as it falls, it is so breathtakingly beautiful.  A sign of a well lived life, full of love.  They are still falling and for that, I relish what I have now.  No matter what it is.

  • Summer of ’87

    ….Hot summer nights, mid July, when you and I were forever wild….Hot summer days, Rock n roll, the way you played for me at your show, and all the ways I got to know the pretty face and electric soul….(Young and Beautiful, Lana Del Rey)

    I meet him in the summer of ’87.  A world away in a time that has slipped through my mind’s fingers faster and faster as the years rolled by.  He was a goofy looking guy pumping gas at a local station in St. Michaels.  I was waiting tables in a tiny little tourist pub.  Our friend Chris was the connection.  We had met the summer before bussing tables at a great big giant tourist pub.  The how and when we met escapes me.  The challenge he issued never has.  He called me dull and straight laced.  He told me I couldn’t be wild and let my hair down.  I countered that I could and he told me to prove it by going on a date with him.  I accepted the challenge and showed up as he was getting off work, wearing turquoise jams with huge lotus flowers printed all over embarrassing places topped with a hot pink shirt with a tail that went down to my knees, and the hair of course – loose and wild and big.  The look on his face was of total shock.  He had never seen me outside of the constrains of the dull and straight laced waitress uniform I wore.  So there I stood, clearly the winner of the challenge, grinning that crazy little grin while he took in the sight of this strange Freshman coed girl-woman.  He smelled of petrol and was wearing his uniform over worn out jeans with no knees left, with his name stitched on the breast pocket – David – but I will forever know him as Fruit.

    So began the summer romance.  My friends Karen and Chris were already a tad attracted to each other and the natural course of a foursome was formed.  Chris was a big 3 stooges fan and Fruit would follow suit with all the antics and “wise guy” skits.  Like Larry and Moe without curly and two young girls home for summer break their only witnesses to the show.  We’d get off work and hang out on the back of Chris’ truck in a corn field while the boys played guitars.  Every once in a while, the boys would wander off to use the “facilities” and would loudly announce “ok evil Corn People.  Stay away from our women while we’re gone.  Don’t murder them with an ax.  We got to get them home in one piece.”  Some nights we spent at Fruit’s house, listening to Pink Floyd or any music with an impressive guitar solo or drum solo that could be played over and over again.  Larry Chris and Moe Fruit going “hey, hey, listen to this part”.  One night Chris fell over Fruit’s drum set.  And I quote “if you need me . . . .boom bang crash clang…..I’ll be outside”.  We laughed at him for what felt like hours.  We came out of the movies in the pouring rain to find Karen’s Mach with a flat tire.  Fruit and Chris jumped right in to fix it as we all stood around getting soaked to the bone.  Karen turned to me and whispered “I think they’re putting it on backwards.”  I agreed and we both pointed out the mechanical error.  We were told we didn’t know what we were talking about.  OK – we stood there in silence and watched the struggle until there was nothing dry on any of us.  They turned it around and it slipped right on.  More laughter except this time, only from the girls.  All of us were so alive and young.  Our world shimmered and sparkled.  We didn’t have a care in the world.

    To an 18 year old, time feels like it can stretch out forever.  That summer seemed to never end.  But summer became fall and back to school we went.  Fruit and I still saw each other when we could and reconnected the next summer.  People commented on our “quirky cuteness” and said we looked just like Tom Petty and Stevie Nicks.  We fell in love, briefly.  We’d challenge each other with our devotional statements.  I love you most…. I love you more…..I love you to infinity……I love you to infinity X 2.  Boom!  Can’t top that, now can you?  Fruit was first to coin the infinity X 2 phrase.  It was his go to.  Infinity doesn’t last as long as we want.  Only as long as we need it to.  We drifted away and the shimmering summers we had faded into distant memories.

    Our paths crossed again in 2000.  We were different people and a little harder around the edges with what life had handed us.  But there was comfort it recalling our youth.  A kind of magic in recounting tales of our carefree days.  He had all but shaken the nickname of all those years ago until I rolled into town, shouting FRUIT!  How ya been?  My nieces took music lessons from him and as hard as I tried, I couldn’t stop calling him Fruit in front of them.  They giggled at their little inside secret information about Mr. David.

    I had just wrapped up attending my Mom Mom’s service.  There was a little breathing room between family visits on Sunday.  That’s when my brother gave me the news.  David had died on Saturday evening.  I was angry.  I’m still angry.  And yet we knew he had cancer.  We knew it didn’t look good.  I’m angry for selfish reasons. He was my youth.  He was suppose to be invincible, shining in the summer sun before things like being worried about bills, and our health, and climbing those stairs with our old knees kicked in.  Fruit was the promise of what was to come, and was not allowed to live long enough to see it.  And his wife?  I’ve seen that pain.  It hurts like hell.  I’m angry that she has to go through it.

    I need to replace the anger with something else.  Take a breath.  Let myself make a promise.  Or more accurately, a challenge.  Let us always live our youth, no matter our age.  Live like we’re on summer break and there are no cares in this shimmery shiny world.  Challenge ourselves and our friends to step out of the dull box.  Stop to laugh at the fall and the flat and the dark things in the corn field that scare us.  Let us love to Infinity X 2.

     

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    The caption in my scrapbook for this picture reads “Nothing better than Pepsi and Fruit”

  • Parallel Lives

    I was photographing a soccer game.  Focusing on the action on the field, conversations from the spectators floated to me as they usually do.  One kid asked his mom for a few dollars to use at the concession stand.  A dad was pacing up and down the side lines giving advice to his son.  A few girls giggled as they held up their cell phones to each other.  A woman was sharing a friend’s trials with her neighbor.  Side by side, they sat in the standard issue game watcher’s folding chairs. “She lost her husband to cancer last year.” she explained.  “Pancreatic cancer.”  Then she went on. “She beat breast cancer.  Her hair is finally growing back in, but she just found out her mother has breast cancer.”

    For the first time in over a year, I was struck with that eerie sense of – I don’t even know what I would call it.  Not dejavue, or irony, or coincidence. More the sensation of being connected to something bigger and yet, disconnected from all of the world.  I froze behind the lens, playing back my own husband’s death, my breast cancer, my mother’s breast cancer.  I almost felt haunted for a split second, and then I was overwhelmed with the urge to introduce myself so I could share our similarities.  But sometimes being connected to something bigger while disconnecting from the world sticks me in my head, to be alone with those thoughts.  I didn’t want to approach them.  That could either lead to them asking  who that crazy lady was or all of us chatting away until we felt obligated to exchange phone numbers or worse, friend each other on Facebook.

    I wanted my Parallel life to remain anonymous to me.  And yet, a million questions bubbled to the surface of my brain.  Questions like, when he drew his last breath, did you feel as if you would stop breathing too?  Then the days rolled into weeks and months and did you find yourself still moving?  Still breathing?  Still living despite the heavy weight of grief sitting on your chest?

    Did you discover your cancer just as the weight was losing its grip on you?  With the diagnoses, did a strange sort of fearlessness fall over you?  As if to say that losing him braced you for this.  This next round of your trials.  Did you somehow know in the depths of your mind that your struggle would be easier than his?  You intrinsically knew that you would survive.  You knew you had to for his sake so that you could fulfill those promises you whispered to him at his bedside.  The promises to live in every moment of every day.  Did you promise to carry on without him as if he were still by your side?  Surrounded by people who love you, were you finding yourself lifting their spirits along with yours?  Because you remembered all to well what it was like to care for someone with cancer.  Because you now understood that fighting cancer is sometimes easier than caring for someone with it.

    Did you feel like some strange reversal of fate was unravelling before you when you got the news about your mother?  As if time had suddenly gone backwards and sideways until you thought you must have fallen down the rabbit hole, only to have your mother follow you.   Meanwhile, did your father stand by both of you, despite his fear of losing both wife and daughter?

    Those questions will never be answered by that mystery woman.  My parallel life.  I know I’ve answered them again and again.  Those answers seem to morph with each experience I encounter.  One answer will always stay the same.  It can answer thousands of questions thrown about like confetti.  It makes us all a little more human.  It connects us to the air we breath and the ground we walk on.  All that has gone behind us and will go before us has happened to another human in another time and in another space.  With all that we feel, all our joys and all our sorrows, comes one true thing – somewhere, someone out there is experiencing the same thing.  We are not alone.

     

     

  • Take it Easy…

    …take it easy.  Don’t let the sound of your own wheels drive you crazy. (The Eagles)

    I am 1,686 miles from home and still have 856 miles to go before I meet Gary for the second half of my walkabout.  Or should I say driveabout?  When I hatched this plan to go visit a few family and friends, I didn’t think I could actually do it. Planning to be alone on the road for 8 days with 3 short breaks in between sorta had my hamster brain spinning in his little wheel at turbine speed.  Furiously plotting points in Google maps, analyzing the budget, finding all the penny flattening machines along the route, pouring over hotel ratings, downloading travel apps, and calculating the cost of gas with complex algorithms kept that little hamster focused.

    And then I started the car.  And the sound of my own wheels drowned out that other wheel.  Once I was in motion, my biggest challenge was figuring out how to eat the boiled peanuts I picked up in Bamberg, SC while driving to Conway,AR.  My advice to all my fellow boiled peanut eaters (which I am fast learning that these folks are a small demographic) – don’t do it.  Meanwhile, in the pros column,  I’ve discovered that there are a lot of songs about places that you can not resist singing as you drive.  After leaving my parents’ homestead in Bamberg, there was “Georgia on my Mind”.  It wasn’t long before I was in “Sweet Home Alabama”.  I got to drive right by “Talladega” and I hear there’s nothing sweeter than “Tupelo Honey”.  Of course, the medley journey wasn’t complete until I was “Walking in Memphis”, walking with my feet ten feet off the ground.

    The medley ended on the Doorstep of my college BFF where I was greeted by her and her family and the cat menagerie.  The greatest gift we have in long standing friendships is being able to lower our shields.  Those shields we keep raised around us in our normal contact with daily life.  No need to be anything other than who we really are in each others company. No need for the emotional suit and tie.   Our conversations flowed freely as we visited Pickles Gap so I could collect my first flat penny engraved with the words Toad Suck Country on it.  Her daughter scored the deal of the day with her purchase of Monkey farts scented bath salts, which had an odor akin to overly ripe bananas.  Of course, there was fudge to bring home.  Everyone in the Roger household had to return to their normal routine this morning as I packed the car and thawed it out.  The youngest shuttled off to school, the menagerie given their breakfast treats, a quick husband/wife kiss while holding brief cases and lunch bags, the trash rolled to the curb all happening seamlessly as I waved goodbye.  It made me think of my mother and me swapping Cinnabon parts over breakfast before I drove to Conway because I like the crunchy outside and she likes the gooey inside.  It brought back the scene of Gary standing in the doorway until I had pulled out of the driveway on Sunday.  All of them going back to their Honey-do lists while my tail lights head off into the distance.  I have been gone just long enough that mixed in with the curiosity and excitement of what waits for me down the road, is the desire to indulge in the ordinary routine of daily life.  I guess sometimes you have to take flight to see how extraordinary your nest is.

    There’s one more nest to visit before I meet Gary in Las Vegas.  The downside to taking a crazy college style road trip, when you’re going solo and twice the age of a coed, is the lack of driving stamina.  I couldn’t make it all the way from Conway to Socorro, NM in one shot.  Despite my overwhelming desire to see my son right now, I’m hunkered down in Amarillo, TX.  I confess that as I was standing in the hotel lobby, a young evil coed hamster tried to get on his wheel, saying “hey, what’s another 5 hours?  You got one of those little bottles in your purse that has 5 hours of energy in it. Drink up! Roll on down that road.”  Good thing the hotel would have charged me a cancellation fee and I tend to be just a wee bit obsessed with budgets and points and reward refunds.  And if I had moved on, I wouldn’t get to sing “Amarillo by Morning”….. go ahead, sing it with me.  You know you want to. 

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  • Live in the Moment

    I thought I learned something about life in the wake of Keith’s death.  I had it all figured out.  The typical clichés all applied to me from December 2011 to October 2014.  Live in the moment.  Live every day as if its your last.  Life is too short.  I stepped through my breast cancer and into a fresh start, holding on to the belief that these were indisputable truths.  I had been warned by the doctors that after treatment, a cancer survivor can find themselves maudlin, lost, depressed.  Brought on by the monumental task of surviving the cancer, I threw everything emotionally into recovery until I was just a shell of my former self.  With the double whammy of losing Keith to the disease and then being diagnosed myself, the only emotion I truly felt in its entirety was anger.  Really? Karma? God? This is what you want for me?  Did you think that I was not paying attention when you took Keith away from me? Did I really need a follow-up lesson here? I’ve walked through the fire twice now and this is all I have to look forward to?  Suddenly, that live in the moment lesson wasn’t sitting well with me any more.  There was something fundamentally wrong with it and yet I couldn’t figure out what it was.  So I went silent and let the world turn without me.

    And turn it did.  After a dark winter of aching bones and angry skin, my son moved back to the land of enchantment to find his health.   He will return to his higher education in the mountains of New Mexico that we called home for years.  Gary and I both decided to work for my brother, putting Gary on the road while I worked from home.  Long stretches of solitary confinement started to compound that feeling that I had somehow lost myself.  That part of me that found joy in simple things.  I picked at the open wound of having all the people I love the most miles away from me.  As if their physical proximity to me could somehow fix things.

    Then I went to the beach.  Originally, Gary, his daughter, and I were to go to the beach.  Then I let the weight of work anchor me to the house.  I conjured up the notion that I didn’t want to go, kissed Gary goodbye after covering him in sunscreen, and went about my day.  Two hours later, I had become a caged animal pacing the house.  So I wrapped up what I had to do, threw on a bathing suit and hopped in the car.  By the time I arrived, driving winds of sand had chased everyone off the beach to the comfort of lounge chairs by the pool.  Wired from the drive and the fact that I would actually escape the house for a few hours, I resembled a squirrel on 5 hour energy by the time I walked over to Gary.  I couldn’t sit still, and even with his warning that the beach was an ugly sand storm, I had to go.

    I stood in the icy waters of the Atlantic ocean with the sand swirling behind me to almost white out conditions. Angry waves raced towards me, crashing at lightening speed, foaming at the shore like some sort of rabid creature.  And it was an exhilarating, intoxicating, beautiful rage.  I kept casting my eyes up and down the shore and watched as person after person abandoned their posts on the beach until it was just me and the life guard.  I stood in the surf, letting the violent ocean sweep away my thoughts until the calm rolled into me. Finally turning away, facing west, I could almost see my son in the mountains beyond the blowing sands.  I walked up to the lounge chairs where Gary was enjoying the tunes playing from his daughter’s JVC speaker as they idly chatted.  I was as happy to see him as a loyal pup who’s best friend just walked in the door.

    That is how I returned to the land of the living, leaving my anger and sadness to the turmoil of the sea.  I had it all wrong before, or mostly wrong.  I can not live in every moment.  Not every moment is worthy of my devotion.  Some moments I merely reside within, pass time and take up space, until those moments worth living show themselves.  Every day is not our last day.  There is only one of those.  Since I don’t know when that day will arrive, I need to forgive myself those hours and minutes and seconds that I find myself emotionally procrastinating.  I need to recognize my Carpe Diem when it appears.  Easier said than done.  She’s notorious for her disguises and stealth like mannerisms.  I found this one hiding in my purse, looking remarkably like a bottle of sunscreen and a beach towel.

  • 40 Wonder Years

    40 years ago I ran into my childhood friend on the playground.  I broke her glasses and formed a rainbow colored goose egg on my forehead.  We’ve been friends ever since.  Today she’s flying back home after a brief BFF retreat with me in my humble new home.  Its been a grand adventure.  She got in her Maryland scrapple and crab fix.  She treated me to that famous Wisconsin cheese.  We got to chat away the miles and the years over the fire pit while roasting marshmallows.  We spent an afternoon with her family and it felt like home.  Just as it always does and just as I know she feels when she is with my family.

    My intent as I was driving her to Dulles was to take the scenic route through DC.  It was scenic but not quite what I was aiming for.  More like a roll up the windows, where are we, scenic route.  We rolled into the terminal and within seconds she was on the curb, purple suitcase in tow, and I pulled away to head back home.  And what was this?  I felt this strange punch to the stomach, and the tears came, and I was baffled.  Confused by such a reaction to the end of this quiet little retreat.  And swimming into my head, rose Billy’s eulogy at Keith’s memorial service.  I couldn’t remember all the words but I could feel the emotions of it.  Billy and Keith became friends when they were 4 years old, at an ice skating rink.  Keith collided with Billy and knocked out one of his teeth, which landed Billy in the doctor’s office.  A tale very reminiscent of how Karen and I met.  50 years later, there was Billy standing vigil next to Keith’s hospital bed, with his wife and children and then standing before a packed synagogue recounting a 50 year friendship.  Showing us the essence of Keith from the age of innocence and simplicity through the years to the man he had become.  There was the source of my ache, as the miles moved Karen and I away from each other and back to our daily routines.  It was the first time that I had ever felt any true understanding of what it must have been like for Billy.  Yet I still found myself confused as to, why now, would something like that hit me.  Through the tears I had managed to miss my turn and landed right in the heart of the Mall in DC.  Exactly where I wanted to take Karen on the ride in.  Looping around the Washington Monument and past the World War II Memorial, I snapped out of the tears.  Some times, you are meant to be in the moment with a true friend and some times you are meant to sight see.

    There was something about my conjuring of Billy’s eulogy and replaying Karen and I talking about how we wished we were better about staying in touch. How life just has a way of busying us up and squeezing out those connections to people who are a part of our lives yet not part of our daily happenings.  And how hard it is to tell people we love what they really mean to us.  But if Billy could do it, why couldn’t I?  Why wait for the eulogy?  What is there to be afraid of when speaking your heart to someone who knew you before the training wheels came off your bike or before you worn a training bra? Was there for you when you discovered that there was no Santa Claus, or when you kissed your first boy, got into your first mischief, passed the driving test, failed the math quiz?

    For me, it is because I must visit a time in my life when I was truly an ugly person.  My second year of college.  I had let the ills of others who had wronged me taint me like a dark cancer of my spirit. All through Freshman year, it was building and growing.  I could no longer distinguish truth from fiction.  I was only capable of building shallow superficial friendships under the guise of party buddies.  There was little self esteem going into my higher education and there was little I did to regain it.  Meanwhile, Karen and I would stay in touch, sending each other postcards from the sides of wine cooler 4 packs.  I went to visit her, she came to visit me.  We spent the summer between our freshman and sophomore years, working together at a local restaurant down in St. Michaels.  We had met a couple of guys and all 4 of us hung out after hours.  When we returned to our studies in the Fall, I continued to see one of those two guys.  And he was no good for me.  As the fall rolled into spring, my cancer of the spirit had grown to the point where my roommate, Cathy, moved out between semesters.  I started to blow off visits to Karen, driving right past her to get to him.  I partied more and more.  I alienated more and more people.  I skipped Karen’s debut as the lead in one of her college theater productions.  I became so mired in lies, I no longer knew my own truth.  And Karen was angry with me.  I was hurting her again and again with my betrayal of our friendship.  And I was so ugly, I didn’t care.

    But then that no good boy dumped me.  With no self esteem and no true friends, I fell apart.  My cancer had eaten its way straight through me and had turned me into a dark mad hatter who had poisoned the tea.  I can’t remember all the details.  I don’t remember calling Karen, but I think my ex roommate did.  Cathy had talked me into seeing the campus psychologist and actually set up an appointment for me.  At the appointment, Karen showed up.  She drove the 5 hours from her campus to mine.  She was there and the look on her face scared me because in that moment I could see all that I had injured her with in those last couple of years.  I suddenly cared.  And we went through that session, and she made me speak the truth and never let up on me.  She didn’t cut me any slack.  She never wavered and never flinched with each confession I made of all the things I had become.  And if I spoke one false word, she brought me back around to honesty.  And she saved me that day.  And for a long time, I hid from her.  I could not look at her and yet at the same time, the cancer slowly lost its grip.  Loosened its tendrils from around my heart and allowed me to love myself.  I was free to be honest again.

    At Karen’s wedding is when I first truly understood what she did for me.  As I stood up there reading a poem during the ceremony, I was shaking and nervous with stage fright but determined to not let her down.  She still trusted me with this important task even when I had damaged our relationship.  I have often thought of that day in the Spring of my Sophomore year, when she appeared on my doorstep, angry and hurt from my actions, solely to save me.  The selfless act of a childhood friend.  She was there to be my witness to that innocent child that still lived inside me.  The protector of that part of me that still believed in Santa Claus, the Tooth Fairy, the Easter Bunny, and of course, magic.  Karen taught me how to be a true friend again.  And for that, I would drive lost through DC at any hour of the day or night, recounting eulogies in my head until I am smiling through the tears.

     

     

     

  • Well Behaved Cancer

    It’s hard to believe that eight weeks ago, I was in Mercy hospital, hooked up to monitors and IV’s, struggling to take my first journey from bed to chair.  The task requiring a nurse and my mother and every bit of will power I had to make the half hour trip of 5 steps.  I was victorious.  I lasted maybe 30 minutes and then took the half hour trip back to bed.

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    My First 5 Steps

    That was the half way point.  That short hour and half.  Eight weeks before that, I received my diagnosis.  Here we are eight weeks later, on a course of tamoxifen and continuing my journey into all the tomorrows I have, a minute at a time.  Last night, Gary and I stopped by one of our favorite watering holes, Tall Tales Brewery, for what we thought would be a quick bite.  We were treated to an evening of entertainment as a musical duo performed everything from Johny Cash to Phil Collins with nothing more than an acoustic guitar, a set of bongo drums and harmonizing passionate vocals.  We sat outside, feeling the unusually cool breeze for a July 4th evening roll across us as their very special arrangement of Collins’ “In the Air Tonight” started up.  Guitar licks effortlessly drifted and swirled around the bongo rhythms, building in intensity until they erupted into goose bumps across the surface of our skin.  One more minute of my tomorrow flowing into memories faster than those five steps I took in that hospital in another life time.

    And then they played Led Zepplin.  And there was Keith with me once again, my Led head as Gary put it. I rested my chin on Gary’s shoulder, the scars that cover my abdomen and breast leaned against his back.  We drank in the music and all seemed right in the world.  I treated myself to mango sorbet while our band wrapped up the evening with an acoustic spin on Hendricks’ Star Spangled Banner.  And there was Keith, at Woodstock, witness to that original performance.

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    On the Road to Recovery

    My medical oncologist is the one and only, Dr. David Smith.  He was Keith’s oncologist.  I will never forget his red rimmed eyes as he told me the morning Keith passed away that we had lost the battle.  I could think of no one else that I wanted to take care of me for this portion of my treatment.  During my first meeting with him, he explained my cancer in just a few simple words.  Its well behaved.  My breast cancer is following doctor’s orders.  Dr. Friedman who performed the mastectomy knows this.  Dr. Collins who performed the reconstruction knows this.  Dr. Smith knows this.  And now I do too.  All part of this journey that started with hearing the news, followed by surgery, followed by recovery, followed by treatment.  But unlike Friedman and Collins, Dr. Smith and I share something.  We know what it means to have well behaved cancer.  It means we’ll win this one.  I could think of no better way to thank the doctor who lost the battle along side us to Keith’s badly behaved cancer than to be his next Nielsen patient.  That and to enjoy every moment I have here on this earth.  Each and every one.

    Moments like stepping into a musical treat last night.  After I type this I’ll meet my son, so we can join Gary at his friend’s annual Saturday fireworks show.  Gary is busy right now, helping Bill cook up the chicken.  I’ll be on the road in just a few moments to get Zach.  Soon enough, we’ll all be at the party, eating and laughing and being in the warm company of friends in the unseasonable cool air of this summer.  Then we’ll watch as Bill lights up the sky with fireworks.  Tonight, they will be even more special to me than ever before.  Tonight they will go off about the same time I was taking my first five steps in that hospital room eight weeks ago.  A celebration of my half way point.  A display of moments yet to happen.  A joyous noise for a well behaved cancer.

    Eight Weeks Later
    Eight Weeks Later
  • Choose Your Own Adventure

    My brother and I spent endless hours reading these mesmerizing little game books known as the Choose Your Own Adventure
    series. It started with the Cave of Time, and it didn’t take long before it was weathered, worn and filled with wrinkled, dog eared pages. Pretty soon, we had them all and read, swapped, reread, and swapped them until they were all worn and creased, some of them needing to have the pages taped back in. The premise was simple – read along until you have to make a decision – the entrance to the cave collapses and you are trapped. Do you wait quietly in the dark until help arrives? Turn to page 10. Do you keep moving deeper into the cave to find another way out? Turn to page 20. We had gotten to the point where we started to challenge each other – who could make choices that would keep you reading the longest, who would manage to read those books enough to discover every possible ending, which one of us could make choices that would loop us back to a section we had already read.

    I think I could write my own choose your own adventure book. Just from the past 3 years. Call it “When Cancer Comes Calling” or “Finding Love, Health, and Prosperity Again”. And what an adventure it’s been, wrought with endless decisions, taking me to every new page with baited breath, asking “am I making the right choice?” Through Keith’s cancer and death, Dad’s illness, losing one job and finding a career, taking a leap into loving again with Gary, moving from the family home to a new warm abode, and this latest chapter of breast cancer and recovery, the adventure is still being written, still being read. There are still choices that need to be made.

    I have discovered a common thread with all my choices though. One guiding principle that gives me confidence in all my choices. I continue to get stronger and better after my surgery performed by Mercy hospital. A place staffed by the best team of medical professionals I have ever encounter. I can clearly see where my decision to put my health in their hands has given me a happy bright future full of new chapters to write in my own adventure story. But I can write that book right now, in its entirety. It goes like this:

    When a door closes, a window opens. There you are, faced with your closed door. Do you A) wait for a window to open or B) jimmie the lock on the door?

    B) Jimmie the lock. Never wait for the window. We may have to accept what fate throws at us, but we never have to resign ourselves to it. We have it in us to fight back, take control, choose our own adventure until our pages are weathered and worn.

  • A Week Later

    I had my first grand day out today.  I slipped an old maxie skirt up to my rib cage, carefully tucking the tubes that lead to my drains into the folds of it,  pulled Gary’s Hawaiian shirt over the top of my special post surgical camisole, and covered my face in a heavy layer of sunscreen.  Stepping out in to the day,  wearing sunglasses for the first time in a week, there was this rush of joy wrapped around my lumpy getup as I climbed into the car.  We went through the bank drive through.  We stopped at a store and Gary handed me the car keys while he ran in.  I had to chuckle as I sat there.  We are such creatures of habit.  Handing the keys to our passenger as we run in is almost a universal act.  The sun reached in through the sunroof.  Its warm tendrils touching my checks.  Me in the passenger seat with my empty pain ball in a pouch with its tubes still neatly sewn into my abdomen, as useless as an appendix but still permanently attached until I visit the doctor on Tuesday.  The clock ticks down on the need for the three drains tidily clipped to my clothing.  Ever mindful of keeping my right arm low and rested, I stared at those keys in my hand.  I could do nothing with them.  I couldn’t even open the car door.  And yet they whispered of what is to be.  That soon, I will be able to do all of that.  Open the door, drive the car, look at my body without seeing all the medical accoutrements hanging off it.  But right at that moment, none of that mattered as much as the simple pleasure of me sitting in a car on a cool sunny morning.

    When I moved to Salisbury, there was a shrine in the form of a recliner that belonged to Gary’s father in the corner of the living room.  I added to it the quilt that laid over Keith’s bed for his last days.  Thursday at 4:00 am, I woke up to the first real experience of pain I have ever had in my life.  Real pain.  The kind that stops you from wanting to move or breath or talk.  That pain ball had run out at the same time that I chose to cut back on the Oxycontin I was taking before bed.  So that afternoon, Gary moved the recliner out front and center of the living room.  I climbed in and rested. My head pressed into Keith’s quilt.  My feet propped up where his father’s once did.  Swallowed the pills and closed my eyes until the pain finally faded away.

    So I seem to have gone from the ultimate pain to the ultimate pleasure in just 3 days.  How do I explain how I feel any more?  This once emotionally unflappable woman finds herself drifting from one moment of joy, or laughter, or lighthearted spirits to the next one full of fear, or anger, or sorrow.  My mother stayed with me in the hospital.  It was one of my greatest comforts and yet, I was like her toddler daughter all over again.  NO! I would say – I can do that myself! as I mentally stomped my feet and crossed my arms.  I couldn’t of course.  And when my son stopped in to visit, I tried so hard to make light of the state I was in and all I really wanted to do was pull him to me as if he was still my baby and hold him, for my own comfort.  Then when I arrived home, Gary found himself stuck with a girlfriend encouraging him to go out and have fun only to get hit with her whiny complaints about being home alone a short time later.

    But in a strange way, I have walked this path before.  I’m just seeing it through my husband’s eyes now.  So many times, he’d do just as I am doing now.  Enjoying the rare warm winter daylight flowing into the sunroom as he rested on the couch.  Telling me to go out and catch that band I wanted to see only to text me with his complaints.  Refusing to let me cook dinner until I pulled a chair into the kitchen so he could sit there and instruct me.  Over and over again, Keith would ask our friends if I knew how much he loved me.  Yes, I always knew.  I know even more now.  I know it with every stroke of mom brushing my hair and each wash cloth she ran across my face.  I know it with each time I looked at Zach quietly strolling into the room.  I know it with each time Gary reaches out his arm to help me stand up, with each meal he cooks for me, each time he reminds me to rest that arm, take my medicine, take a nap.  It is a reciprocal unconditional love.  Its the kind of love you feel when someone hands you the car keys while they run in the store.

     

     

  • What Dreams May Come

    It was not long after I had lost him that Keith came to me in a dream.  He was his normal healthy self, twinkle in the eye, remote in hand, kicked back on the couch with an arm reaching across the back in both directions.  The rain was pouring down and we were in the sun room, so all I could hear was the deafening pounding on the almost tin like roof.  He was talking to me.  From the look on his face, it was idle chatter.  A casual conversation.  Yet I couldn’t understand anything.  I couldn’t make out any of the words he was forming.  I could only hear the cadence and intonation, nothing more.  I could not shake the feeling that he was trying to tell me something important despite his casual demeanor.  I leaned in to understand and only felt more lost in what he wanted me to know.

    He was not the first specter to visit me after leaving behind the land of the living.  My grandmother did as well. 22 years earlier.  She had a mastectomy when she was 48, just 3 years older than I am now.  As a young girl, I remember her letting me put her prosthetic breast in my little training bra.  We both giggled at the large bulge and I was fascinated by the realistic feel and look of it.  10 years later, her breast cancer had metastasized.  She died in the spring, shortly after I had discovered I was pregnant.   When my mother called to give me the news, I crumbled against the living room wall, crying and sobbing and fearful that feelings that strong may harm the new life growing inside.

    And then she came to me in a dream.  She sat at her quilting frame, dressed perfectly in a bright red vest with a gold pin, healthy again, with her crown of dark curls framing her face as she leaned over, thimbled finger pushing her needle up and back.  She was chatting to me but never looked up, focused on the stitches.   I strained to hear her.  I couldn’t.  I knew it was important.  Something about my baby? Words of wisdom to get me through life?  She looked over at me and smiled, then returned to the quilt frame and the task at hand.

    This Friday, I take a major step towards my transition from breast cancer patient to breast cancer survivor.  I will undergo my own mastectomy followed by reconstruction.  Gary and my mom will physically be there.  So many people I love will be there in spirit.   I will have two top surgeons working on this body to remove the poison and replace it with the healthy parts of me.  All I have to do is sleep.  Perhaps dream.  Will I finally hear what Keith and my grandmother tried to tell me before?  Will they visit me again?  Chat for a while?  I hope so.

    Through all of Keith’s illness, my grief in his absense, my recovery, my rebirth, my new love, my new life, my career, my cancer, I try to remember one thing.  I am still me.  I’ve always been Cherish, despite each bump in the road and each twist to the plans.  Come Friday, my body will be changed and yet, there is this little part of me that knows what Keith and Grandma Blades were saying – you’ll be ok.  You have always been ok.  You will always be ok.  You have it in you to do this.  To do anything.  And we are here.  We have always been here.  Don’t look to our cancer for the answers.  This is your cancer.  This is your journey.  We will be there in your dreams and when you wake, you’ll be with those you love.

    I am still scared.  But I am in the best hands.  Both in the operating room and at home.  I will heal.  I will survive.  I’ll meet all of you on the other side of this like the bionic woman.  Better and stronger than before, yet still just plain ol’ Cherish.